IT'S OFFICIAL !!!

      

Definition of NAUSEA

1

: a stomach distress with distaste for food and an urge to vomit

2

: extreme disgust

 
On a scale of 1 -10 , Sammie  is nauseous at a level 10, every minute.

She still gets so hungry and wants to eat but with eating comes dry heaving.

Definition of DRY HEAVES

: repeated involuntary retching unaccompanied by vomit

DRY HEAVING=VOMITING

She wants me to sit with her , she does not want to be away from me. She is exhausted.

Today I had to tell my sweet little Sammie THAT SURGERY IS OFFICIALLY ON HOLD.

I feel helpless, I wish I could wave a magic wand and help her. ( Not only her)

I quietly comforted her tears , telling her " God has a plan"

Sooooooo Sad

ROLLER COASTER

       I once again find my self shocked. I just really want to cry. One of the world's leading experts ( Dr. Hayat Moussa) on Gastroparesis called my home this evening. Dr. Moussa wants Sammie to heal a little bit longer before getting the pacer. I pleaded our case and she will speak with surgeron tomorrow for a final decision. I have fought so hard to find help for Sammie, I would never put her a risk. If Dr. Moussa thinks it will be best to wait , then wait we will. It is going to be a sleepness night in the King household.

EXCITING NEWS

       SURGERY IS ON SCHEDULE!!!!!!
   Sammie will recieve a temporary gastric pacemaker on Friday and hopefully if it helps , she will get the permanent pacemaker on Monday. I am feeling very nervous about the difficult days ahead, I know what Sammie is facing and it is scary.


 Our doctors at Cabell Huntington Hospital are really amazing . Dr. Susan Flesher has been with Sammie since the beginning of this journey and without her we would not going to Columbus this week. Dr. Dustin Robinson did such a great job removing Sammie's appedix.The pediatric resident Doctor Ramsey called our doctors in Columbus daily to give them updates I just thought it was important to thank them all. I think sometimes local doctors and local hospitals get a bad wrap, in our case everyone at Cabell  Huntington Hospital did an amazing job.
     

A bump in the road

  Well, it is Saturday at 5:30 p.m. and Randy, Sammie and I just got home from Cabell Huntington Hospital. Sammie had to have her appendix removed yesterday. I think I am still in shock. My poor sweet baby, she just can't catch a break.

Sammie to Mom  " Mom, my body hates me."

How does a mommy respond to that??
I went to hospital chapel , praying that maybe just maybe her appendix has caused all of
 problems and maybe it is not Gastroparesis. I know God has a plan.

  Now, we wait on a call from Columbus ( Monday ) . I am praying the doctors tell me surgery can proceed but I am preparing Sammie for the fact that surgery maybe postponed. It has taken some much to prepare for this surgery and 10 day stay in Columbus. "Boy, what a pity party I am having"
I am a happy optimistic person, this is not like me. I will just pray and remember, God has a plan.

This is not good!!!

   Just when I thought everything was going smoothly, we have hit a bump! Sammie has been feeling so bad, barely eating or drinking. ( a bite or 2 ). She seems more exhausted than ever. Sammie takes her synthroid    every morning at 5 am and this morning at 5 she was already awake and moaning. She was hurting!! Gastroparesis does cause some stomach discomfort but not this much pain. I thought maybe she was constipated, so we waited to see if bowels would move. If only you knew Sammie she is pretty cool. She has an abnormally high pain tolerance. ( like scary ) She was doubling over in pain and vomiting so hard.
  Thankfully her blood sugars have been right on target. I guess we will see tomorrow what our doctors think, I am really not wanting to transfer to Columbus. Cassie turns 19 on Saturday and I want to spend more time with my mother before we go to Columbus for the "real good stuff" I will do what is best for Sammie :)

D -Day

  January 3rd is a difficult day!!!!!!!!!!!!  Sammie's D Day. 6 years ago today, Randy and Sammie and I heard the words that haunt me at night. Your daughter is INSULIN DEPENDENT!!!!!!!! ( Type 1 diabetic)  Sammie would only live a few short days without insulin, that is our reality everyday. A little purple insulin pump keeps my daughter alive.
  Sammie isn't alone, there are other kids struggling. I just want all families of kids with diabetes to know, I not only fight for my daughter but for your child also.

A Letter To Type 1 Diabetes From A Mom

Dear Type 1 Diabetes,

At this time six years ago you entered our lives. I did not know you and really I had not heard too much about you. You snuck into our lives without notice and lied hiding in wait. Slowly but surely you began to rear your ugly head. You took an eight  year old, active, fun loving, little girl and you made her tired, sluggish and sick. You did not give yourself away too fast, you camouflage yourself so well. You were undetectable to an untrained eye, as you planed the first of what I'm sure were many attacks. Only seeming like a flu that would go away and come back in a few weeks. What I did not know was that this sweet, little girl had an amazing and strong body fighting you every step of the way. You would attack then she would counter, you would attack again and she would match your every step. I really do not know how long this battle went on, but that poor little 8 year old's body just could not keep up with you and on Jan. 3rd 2005 her pancreas was unable to continue this fight. That is when Type 1 diabetes became our new "normal". There was nothing that she could have done, you had consumed her pancreas. You dug your nasty little claws into her and you were not leaving. We do not know where you came from or why you are here but let me tell you something, I will not rest until we find a way to DESTROY you. We will find a cure, but until then you will be fighting me every morning, noon and night. I am the mother of that sweet, amazing, wonderful, brave,tough girl and you have met your match. I can and I will give Sammie everything that she needs to defeat you. You may knock us down but we WILL get right back up and fight you even harder. I will do everything in my power to ensure that you do not take my babies eyes, you will not destroy my  girl's heart,and kidneys, You have taken enough. I see you now, I know you now and everyday that passes I learn more and more about you. I am watching and I will always be watching and I will be patient and I will wait and I will not give up until we find a cure, we will crush you!!

In extreme hatred
Caroline , or better known to you, as Sammie's mom