Thursday, December 5, 2013

    Sammie had her first gastric pacemakerr placed February 2, 2011. It worked well at first and then just stopped working. Our doctors tried adjusting the pacer setting but nothing seemed to work. April 2012 we were sent to Vanderbilt Medical Center in Nashville Tennessee. We stayed with the doctor at VMC until November 2012, when he was not able to help Sammie he sent us to Jewish Hospital in Louisville Ky. A new pacer was implanted on January 22, 2013. This new pacer only relieved symptoms for 2 short months.
Today I thought I would share medications we have tried
Zofran - did not help
Phenergan -  helps quite a bit but can't function during the day because of the sleepiness side effect takes every night
Reglan - worked a bit but caused lactation
Erythromycin - did not help
Imipramine - did not help
Domperidone did not help and caused lactation. This medication is not FDA approved. We received this medication through a clinical trial through NCH
Emend- did not help
Kytril through IV- helped a bit
Sancuso - is patch form of Kytril and did not help
Compazine - worked but caused excessive urination
Meclizine - did not work
Scopolamine - worked great but caused temporary blindness
Marinol - did not help vomiting or nausea but increased appetite
Diclegis -helped nausea but not vomiting, side effect was VERY sleepy. Can not take and function during day
Zuplenz - worked great at first but lost it's effect the longer she was on it. It is a form of Zofran. It is a film that dissolves on tongue.

Remember I am not a doctor simply just a mom. Consult with your doctor.
I hope this medicine list helps :)
Love and Prayers

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