Friday, November 5, 2010
Nationwide Children's Hospital in Columbus
Well, it was all I hoped for, the people in Columbus opened their arms and hearts and pulled me and Sammie inside a circle of support.. It felt so good to have people say " we know what you are going through, it is hard but we can help" My fears and worries just evaporated. We now have a plan, Sammie is starting a clinical trial and going on a drug called domperidone. It is a medication that is not FDA approved for use in the US. but is used in other countries to treat stomach motility problems. It has some side affects but hopefully the good will out weigh the bad. The doctor talked of feeding tubes and then of researching our insurance to see if it will cover the gastric pacemaker. It feels so good to have hope.